Fri. Dec 6th, 2024
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EESC: For an EU commitment to tackling rare diseases
29 November
29/11/2024
This page is also available in: FR, HU
Budapest Congress Centre, Alkotás street 63-67, 1123
The EESC is organising a major conference entitled “For an EU commitment to tackling rare diseases” on 29 November 2024 from 9:00 am to 4:00 pm in Budapest Congress Centre.
With this event, the EESC will demonstrate once again the commitment of civil society organisations to support the establishment of a European policy framework for rare diseases, bringing together all the stakeholders needed for a concerted strategy in the areas of research, prevention, digital, healthcare, social protection and investment in rare diseases, both at European and national levels.
This conference will present the EESC’s exploratory opinion drawn up at the request of the Hungarian Presidency of the Council of the EU on Leaving No One Behind: European Commitment to Tackling Rare Diseases, which was adopted at the October EESC Plenary Session (Rapporteur: Ágnes CSER, Civil Society Organisations – GR III, Hungary).
This event, will take place at the Budapest Congress Centre, in Alkotás street 63-67, in Budapest, Hungary. The event will also be webstreamed in English and Hungarian.
Downloads
Rare Disease 2024 11 Budapest DPN – EN
Related links
Rare Diseases in the EU: Joint Action shaping the future of ERNs
Press release EESC calls for European flagship initiative for health and action…
Related bodies
Section for Employment, Social Affairs and Citizenship (SOC)Transport, Energy, Infrastructure and the Information Society (TEN)
Agenda
- Event information
- Registration
- Program
- Speakers
- Webstream
- News
- Presentations
- Press releases
- Related opinions
Related areas
Details
- Date:
- 29 November
- Event Categories:
- EESC, EVENT, IEU AGENDA
- Event Tags:
- EESC, rare diseases
Venue
- Budapest
- Hungary + Google Map
Organizer
- EESC
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